Topic Posted by: cc
Date Posted: Fri Jun 27 2:16:07 2008
Additional Comments:
I read cgem's comment about a meltdown yesterday & thought, oh yeah, that's me. The last 2 days have just about done me in.
We had feeding specialist here tues. & she rearranged our feeding schedule. One of the things I was excited about when we left hospital was the directions to do 4 feedings per day. One at each meal & one at bed. He was having some trouble tolerating the amounts. Anyway, the feeding lady wants us to divide the total amount & spread it out over 6 feedings, which more closely approximates the way a toddler would eat. I think that makes sense, but this means feeding every 2 - 2 1/2 hours, breakfast to bed. Ugh. By the time I get everything done & get it all cleaned up, it's almost time to turn around & do it again.
Yesterday was my first effort with this new schedule & it was just so blatant/in my face how much time is consumed by all this. It's summer. What about taking off & going to the pool for the afternoon. Stuff is piling up around me that I can't get to. My planters are still full of last year's dead stuff & there are 8 bags of mulch by the garage that I didn't get finished LAST June.
Today was about the same, except that today I am physically exhausted & babycc threw up after 3 of the 6 feedings. He managed to get me each time, so there's a whole extra load of laundry. I know tomorrow is another day & there are some things I've got to look into. I think he gets weighed tomorrow. Cross your fingers & say a prayer.
Oriental Mushrooms
(I use whole sometimes instead of slicing them)
1# sliced mushrooms
2 Tbs. olive oil
2 tsp. sugar
4 tsp. soy sauce
1 cup water
2 tsp. sesame oil
Saute mushrooms in oil until tender. Stir in sugar, soy sauce & water. Cover & simmer 25 min. or until wter is absorbed. Add sesame oil.
Posted by: JuMPer Date posted: Mon Jun 30 22:27:12 2008
Message: cc, did they give him anything like PRILOCEC?
Our little Sabrina was put on that would she couldn't keep food down. She was missing a chemical in her stomach that didn't allow her to digest her food.
They did get her weaned off if it. If they would not have, her stomach would never have developed the enzyme that it needed.
Does baby cc have all the enzymes that he needs to properly digest food?
Posted by: JuMPer Date posted: Fri Jun 27 22:47:08 2008
Message: cc, you have been doing a great job in your mother role. I have been reading, ont always posting on your baby cc posts.
It takes a special mom and a special heart, and lots of energy, kindness and gentleness, perserverence to get through each day.
You have shared so much with us about dealing with a special needs child. To allow people into your life, and see what could be a huge meltdown, yet, you take one day at a time, one feeding at a time, one more load of laundry at a timeknowing that tomorrow will be there for new adventures.
You have allowed things to be undone, that are not necessary at this time. Sure, you would like to have them done, but you have prioritized your life and do what you need to do.
YOU are a great mother, and will reap rich rewards from your efforts. Life is sometimes very tough, and you are an example of the tough getting going. You are just as special as little cc. God bless you.
Posted by: misspm Date posted: Fri Jun 27 13:18:33 2008
Message:
Bless your heart CC. It's amazing that you're only on the brink of a meltdown and not already in full meltdown mode with all you have on your plate right now. It has to be frustrating...all you want is for the little guy to eat. Who knew something so basic could turn out to be such a challenge? He's extremely blessed to have you.
I am saying extra prayers for you and babycc. I pray his weight is up, that he will keep his food down, and that you'll get out to your garden and to the pool for a little R&R.
Posted by: Catrin Date posted: Fri Jun 27 11:27:21 2008
Message:
Bless your heart, cc. I don't really know the situation but it sounds like you are overwhelmed and deserve a good whine (or some good wine, lol)! Just print AngD's reply and read it when you're in meltdown mode.
My friend's daughter had twins and one of them has a feeding tube. She has all the family helping and they are all exhausted!
And thanks for the recipe, I'm going to make that soon, I have all the ingredients.
Posted by: emmy Date posted: Fri Jun 27 10:29:24 2008
Message: I'm with you. What DID happen to going to the pool? I haven't taken my kids to the pool.... ever. William got to go, when he was a baby. Then I realized that 1 MomLifeguard does not balance with two or three kids. Or my schedule. Being a mom just plain SUCKS sometimes. You have all these beautiful ideas but they don't work out IRL. I'm sorry you're having a bad day.
Posted by: Traci Date posted: Fri Jun 27 10:15:22 2008
Message:
I'm surprised you haven't already broken down. :) You are such a strong, loving mom!!!
You're in a phase right now, that's all. Just like the newborn phase....when you're in it, there's no end in sight. Then, suddenly it's over, and everyone survived. (but you still can't find that damn remote....LOL)
Maybe after a few days, you'll get the routine better, he'll get the routine better, and everything will fall into place. Can you get your daughter to help out?
Posted by: trkdrvrsqueen Date posted: Fri Jun 27 9:04:14 2008
Message:
Dear cc you are doing better than you feel like you are doing! I really love Ang's post below. Housework, chores etc. How important is that, really, in the scheme of your whole life? Your loving care of baby cc is what's important, and you are doing a wonderful job. Ang is right.... we aren't there dealing w/all the challenges, and I you must feel weary at times AND you are doing it!!! I wish I could come and give you a hand....do a load of laundry, cook a meal whatever. I think you need to ask someone for alittle help. Be gentle w/yourself. & again....you are doing better than you FEEL like you're doing!
Posted by: AngD Date posted: Fri Jun 27 8:36:17 2008
Message: CC, I respect you more every day and love you more for that. You are an incredible person and I agree with everyone else; God knows he entrusted baby cc to the right mother. Someday, babycc will know this, and you will too. I know it's easy for us to say "hang in there'' and all that crap because we only have to read about your struggles and not live them. But we say it because we know you can do it, as hard as it may be each day. Those other things you mentioned, the flowers/plants and mulching, maybe cleaning your house. Those are just things. 10 years from now, no one, including you or baby cc, will remember what flowers werein your yard, whether you always wore pristine clothes, what days you went to the pool, etc. But they will be able to look at babycc - 11 yrs old, and thriving and know that you did a wonderful, wonderful thing. You are truly blessed! (((HUGS)))
Posted by: amie Date posted: Fri Jun 27 7:55:10 2008
Message: Hang in there cc, you and your baby will get through this. Do you have anyone that can help you, give you a well deserved break for awhile? I will pray for both of you. You were chosen to be his mother for a reason, and one day, he will be a better adult because of all the love you gave him. I'm rooting for you.
Posted by: Paulsmom Date posted: Fri Jun 27 3:26:22 2008
Message:
Aw, cc, I'm sorry this is so hard on you. God did not give you baby cc for no reason - he knew you could handle it (not everyone could). But that does not mean it would be easy. It will all be worth it in the long run but I know it's hard. Is there anyone who could help? Like could mr cc be ''trained'' to do a couple of the feedings, or is it a two-person job already? If I lived closer I'd come and help. I'll keep y'all in my prayers as always and I will cross my fingers for you for the big weigh-in.
